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we want to include here some language that the specification is completely naive about whether those data can be shared. Along these lines, it would be a good place to mention that source files requiring anonymization can be stored here and still be considered "source data" (although there's been one processing step in between).
The point is, many students and young researchers may be unaware of the circumstances under which the data may or may not shared and not adding some sort of warning or language here to say: hey, discuss with your PI or your university or whoever this needs be discussed before dropping anything and using this as a means of releasing data public.
The text was updated successfully, but these errors were encountered:
oesteban
changed the title
mention that non anonymised data can go in sourcedata
Suggestion: add some admonition text warning that sharing under sourcedata/ should be done carefully
Mar 22, 2024
That's something we discussed a lot in BIDSonym where we copy the OG, ie non-pseudonymized/anonymized data from the BIDS root into /sourcedata/, apply deidentification there and save the respectively pseudonymize/anonymize in BIDS root.
This might be another use case to bring up/discuss as there's not only "classic" sourcedata, ie dicoms or so, but also BIDS dataset(s) before pseudonymization/anonymization. I'm of course happy to adapt things given the outcomes of this discussion/new guidelines proposed here.
we want to include here some language that the specification is completely naive about whether those data can be shared. Along these lines, it would be a good place to mention that source files requiring anonymization can be stored here and still be considered "source data" (although there's been one processing step in between).
The point is, many students and young researchers may be unaware of the circumstances under which the data may or may not shared and not adding some sort of warning or language here to say: hey, discuss with your PI or your university or whoever this needs be discussed before dropping anything and using this as a means of releasing data public.
Originally posted by @oesteban in #1737 (comment)
The text was updated successfully, but these errors were encountered: